Gilmore Girls just isn't the same without Kelsey...

Jossilyn and I watched Gilmore Girls last night and I really missed Kelsey. She is my "Rory"--minus the school thing of course. The sense of humor between Lorelei and Rory is similiar to Kelsey's and mine.

I registered Kaleb, Kelsey and Jacob for Not Back to School Camp last night. There were so many things we had planned for this year that we are not going to be able to do because of this stupid cancer.

I haven't completely crossed the Live & Learn Conference off my list yet. Maybe I am being overly hopeful, but we were looking forward to actually being able to go this year. Here we have been unschooling for , I don't know, 6 or 7 years and I never heard f it until right after the 2004 one. Then in 2005 Joss was diagnosed and we were in Boston because she had just received her first BMT. Last year it was in NM--a long haul from Maine, not to mention we were in the midst of the one year post transplant battery of tests and she hadn't received the go ahead to actually be able to do something like that. It was on the calendar for this year and this had to happen again.

The biggest disappointment for the kids is not going to Pennsic. http://www.pennsicwar.org/penn36/index.html
We have been planning that trip for the last 6 months--making garb, etc. But no matter what Joss won't be allowed to go camp in Pennsylvania for two weeks. There are other SCA events we won't be able to go to either. Panteria is definitely out as it is in Vermont in May. Great North Eastern War --probably a no go also... The youth fighters were going to invade Canada this summer too. I wanted to go to the Black Rose Ball in a couple of weeks. But there are a few things that still might be possible. Granted we won't know until the last minute, but we'll take whatever we can get.

I am hoping the NBTSC is something the oldest three can look forward to. I won't be surprised if Kaleb opts not to go. I think it will depend on whether I am home or not. But overall I think it will be a good break for them.

Jossilyn: STILL NO FEVER!!! The cytarabine (aka Ara-C) really seems to wipe her out and that was over yesterday. Her lungs are sounding better. Her breathing is easier. Her respiration and pulse rates are almst normal. Her bruises still make me cringe but they are fading. The one on her shoulder still looks nasty. It covers her whole little shoulder. And the two from Thursday's bone marrow aspiratation. She is complaining of a headache, though. She seemed to perk up yesterday for a while, but suddenly had a downturn in that she just is not acting like herself. Maybe she is sad. She is not talking much--very subdued for Jossilyn. It scares me. Gives me that horrible feeling that this ime she won't make it. Like she knows something I don't know...